Representing the TS Alliance & The LAM Foundation both when it counts in research & behind the scenes has been something I have championed for a very long time as my health has allowed.
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Tag Archives: FDA
The Compassionate Use Quandary
When I come across items like this in Rare Disease Report, I feel very ambivalent. While much of the comments I can’t argue with, I don’t entirely agree with this stance on compassionate use & right-to-try laws.
