One of the things that comes up for debate every so often in my volunteer communities is the question “I know I need a medical bracelet, but what do I put on it”?
My mentor, friend, & fellow advocate, Casey Quinlan, had posted this article to one of her social media pages back in December a few days before Christmas. I had flagged it to read later & then realized I hadn’t actually read it. I’m glad I saved it because the timing was right for me to process it.
“I’m just an average person, in relatively good health…”
“I only go to doctors a few times a year, & I pay out of pocket…”
“This is a boring subject. I don’t see why anyone would care about something so frustrating & mundane.”
“All I know is that it annoys the hell out of my doctors. They don’t make eye contact with me anymore, they’re so buried in their computer or iPad.”
I am very pro-research on general principle. The exception lies with “studies” (like this example) which measure only specific short-term endpoints that are inherently hard to measure & quantify.
Things like clinical & economic benefit & those associated “outcomes”.
Everyone has a different definition of “success” in these cases. Also just because it doesn’t show something concrete in dollars & cents or in data points doesn’t mean it doesn’t have value.
Virtual visits have finally arrived to one of my local health systems. They serve both people with & without insurance & the visits are $49. This might be a good way for me to check on things if it is after hours or on a weekend. I’m actually excited to see this.
This mug I’ve seen circulating the internet for quite some time the past few weeks. I’ve seen some great posts on it & some not-so-great ones.
So today, I’m trying not to think. Just be. No schedule or plans or map. No deep thoughts or insights.
I guess part of the reason I stayed at Medscape for as long as I did (8 years) was because I enjoyed working on content for healthcare professionals. Doctors, nurses, pharmacists – I met many of them “virtually” or otherwise. Some of them really showed me compassion not only as a colleague but as a person trying to navigate their way through the healthcare system & give back to others & make sense of my own situation.
I admit it, I’m a hardcore digital & app geek. Probably equally or more so than I am a healthcare geek. My iPhone is literally another arm. But there are valid reasons for that given everything I need to keep up with.