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AS I LIVE & BREATHE

A Woman's Journey With Rare Disease

Monthly Archives: May 2017

05.26.17
by Nikki

“I Am Somebody, But Part Of Me Is Somebody Else.”

Yesterday was an emotional day for me. I turned 40.   Continue reading →

Standard | Posted in blog entries | Tagged blogging, healthcare blogging, LAM, lung disease, lung transplant, lymphangioleiomyomatosis, organ donation, rare disease, transplant, TSC, tuberous sclerosis complex | 6 Comments
05.05.17
by Nikki

The Death of Compassion

I was down for a check-in yesterday with my Diabetes Nurse Practitioner. It was good news.  Continue reading →

Standard | Posted in blog entries | Tagged blogging, healthcare, healthcare blogging, lung disease, lung transplant, medical marijuana, organ donation, organ donor, organ shortage, transplant, transplantation | 4 Comments

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