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AS I LIVE & BREATHE

A Woman's Journey With Rare Disease

Daily Archives: 11/23/2016

11.23.16
by Nikki

Article: When You Treat A Rare Patient Like A Common One – Bad Things Happen

I came across this article in Rare Disease Report & it did send chills through my body.

Although, it did not completely surprise me (as horrible as that sounds).

Continue reading →

Standard | Posted in blog entries | Tagged chronic illness, chronic life, disability, healthcare, healthcare professional issues, LAM, lymphangioleiomyomatosis, rare disease, rare diseases, transplant, transplantation, TSC | 1 Comment

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