I didn’t talk about my last appointment (last Thursday) because I was getting very frustrated. I was also stressed to the max the week & days before.
I came across this post & had to add it to my list of great content to share. It mimics how I’ve felt for several years, even prior to the transplant journey entering my life.
I hesitated posting this when it came up in my news (from a few sources), but I couldn’t help it. I was first made aware of the issue from this report regarding distance from VA transplant centers affecting survival rates in liver transplants.
But the problem is deeper than a single organ or a single parameter…
After raising hell & a long few weeks, the concentrator for downstairs & travel is here.
My supplier wouldn’t allow me an additional one for the lower level of my house.
They said the reason for this was due to insurance (but that’s a lie, because the supplier that cut me off had given me two to use & I had no claims issues).
With only one unit upstairs in bedroom even when I was using the longest tubing (50 feet is the maximum you can have & get adequate delivery), it didn’t reach everywhere I needed to be.
Furthermore, who can or does want to haul this up and downstairs at least twice on a daily basis (so not practical or safe)?
I had to pay out of pocket but luckily found a place that I could get a used one (rebuilt) from.
When I ordered it, I didn’t realize how long it would take to get to my doorstep ultimately, but the main thing is that its here.
I’m relieved. I was so afraid they’d try to deliver it on a day I wasn’t home. Even part of me was starting to wonder if it would ever show up.
I hooked it up….& it works better than the one I’m renting from my supplier.
Good to have some flexibility back though.
This was an unanticipated expense, so I’m glad I did some fundraising because then I could use some of those funds to take the sting out of the purchase (10 Liter monster that it is.)
The Labor Day holiday has come & gone.
With it, a long shot…. the phone has yet to ring.