Livid! Beyond Words….

Tell me, what kind of company & customer service is this?  This is the email I wake up to this morning after being told yesterday there was no issues with bringing me more e-tanks (large size oxygen tanks):

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Guest Blog Share: I Need To Tell You I’m Having A Panic Attack

Over the past few months, I’ve been sharing some of Erin Gilmer’s work from her blog.

Just so I have a few posts ahead of time in the summer months in case I get that transplant call.

But I would have ended up sharing this one at some point regardless.  Because it’s an important subject to discuss.

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Yesterday

At my last appointment, my transplant doctor put me back on a lower dose of Rapamune until I’m transplanted.  I’m happy about this because he’s on the same page as me with the concern over all the diving around I had been doing with my lung numbers. He’s always on the same page.

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Article: A Few Minutes With…A Father With A Full Heart

I found this story on the LifeBanc Facebook page awhile ago & had flagged it to read in the future.  When I did read it,  I was moved to tears.

I’m not going to say more about it.   The story speaks for itself & stands alone in its uniqueness.

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Great Infographic From Donate Life Ohio

I saw this retweeted a few times from Donate Life Ohio‘s Twitter handle. I in turn retweeted. I love how this infographic boils the whole process down into something understandable and relatable to the general public.

I thought it was worthy of a share.

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Interesting IndieGogo Gadget: Sunscreenr

From time to time I’ve backed interesting crowdfunding projects that could potentially be helpful to me managing my health.  I even have an archive page you can find that indexes many of the devices I’ve looked into & some that I have even tried out over the course of my blogging.

I saw this the other day, & thought it was worth backing.  Because one of the issues I’ve always had with wearing & applying sunscreen is trying to reach hard-to-reach areas & sometimes missing spots. Or wondering if I’m getting even coverage throughout my body.

This gadget, Sunscreenr, addresses that.

It will take on increasing importance post-transplant as many of my meds will make me even more sensitive to the sun on a year-round basis.

So for me, it was worth backing because it will pay for itself in months.

(DISCLAIMER: I was not paid by this company or sent a free device.  I ordered the device on my own from Indiegogo, a crowdfunding site.   I thought highlighting this gadget might be a useful way to share information with others who might be interested or needing such a device for their own personal health. This analysis in no way constitutes medical advice or product endorsement.  I try to keep the devices I select for personal use, profiling, & reviewing in an affordable price range. Often $50 or less where possible. This is $93, but I felt it served a unique purpose.  If a device is more expensive than $50, I make that clear & try to point its practicality & uniqueness in assisting me with my personal health.)