Enchanted Dolls: An Important Work of Art

I am not ashamed of my body, but I didn’t always feel that way.  In fact, when I was younger, I did struggle with some image issues after my surgeries.  Continue reading

Article: Scientists Develop Painless & Inexpensive Microneedle System To Monitor Drugs

As a human pin cushion for several years now, I fully support this advance highlighted in Eureka Alert.

It’s about time something like this came into development (actually).

Hopefully, it will make its way to the United States soon.


What A Week!

So my local lung doc busted butt at my appointment on Friday & got my transfer with my previous supplier (before the debacle of this one that cut me off) reinstated.

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Livid! Beyond Words….

Tell me, what kind of company & customer service is this?  This is the email I wake up to this morning after being told yesterday there was no issues with bringing me more e-tanks (large size oxygen tanks):

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Guest Blog Share: I Need To Tell You I’m Having A Panic Attack

Over the past few months, I’ve been sharing some of Erin Gilmer’s work from her blog.

Just so I have a few posts ahead of time in the summer months in case I get that transplant call.

But I would have ended up sharing this one at some point regardless.  Because it’s an important subject to discuss.

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At my last appointment, my transplant doctor put me back on a lower dose of Rapamune until I’m transplanted.  I’m happy about this because he’s on the same page as me with the concern over all the diving around I had been doing with my lung numbers. He’s always on the same page.

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