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AS I LIVE & BREATHE

A Woman's Journey With Rare Disease

Daily Archives: 07/21/2016

07.21.16
by Nikki

My Dry Run Was Also A Donation Dress Rehearsal

My dry run on July 2 was also a good test to figure out the process of notifying my LAM research team about donating my old lung tissue & organs to research into my rare diseases.

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Standard | Posted in blog entries | Tagged chronic illness, chronic life, disability, healthcare, LAM, lung disease, lung transplant, lung transplantation, lymphangioleiomyomatosis, medical research, organ donation, organ donation awareness, rare disease, rare disease research, spoonies, tissue donation, transplant, transplantation, TSC, tuberous sclerosis complex | 1 Comment

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