Company Profile: AidCube: (Press Release) Lung Transplant Patients use Telehealth at Home

I’m big on telehealth. I think it has potential because I’ve seen it work in rare disease, but here’s an interesting use I have found in Lung Transplant.

Kudos to UCSF for being so forward-thinking!  Thank you AidCube for recognizing this critical need.

This is especially important for those candidates who are a distance away from their transplant center.

Pulmonary rehabilitation is a critical component not only for transplant surgery but a useful tool to learn how to exercise safely & consistently with lung disease.

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The First Big Drop

I often say the wait for new lungs is much like being on a roller coaster. Kind of being suspended at the top, not knowing when the drops are coming or the loops.  In suspension at the top, being scared out of your mind looking down below at how high up you are.

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Book Review: Pieces of Me

I received this wonderful book on my birthday.   I have been reading it slowly but surely because I didn’t want to burn through it, since it seemed very special.

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REBLOG: Invisible Scars: My Life Post Transplant

While I don’t have Cystic Fibrosis myself, I have some friends who do.

I can also relate to a lot of the same heartaches faced by other young people with lung disease.  That’s why I’m re-blogging this post today even though it is a bit older.

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Numbers…Love to Loathe Them

Math is coming back to haunt me.   Numbers are invading my life.   I’m in to my third month of waiting.   I have another appointment at the end of the month & I’ll have some decisions to make then based on what’s been transpiring.

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Sponsored Post: Dear Harried Harriet

Disclaimer: “This is a sponsored post for Self Care Catalysts. I have been compensated through the Chronic Illness Bloggers network. All thoughts & opinions remain my own and I was in no way influenced by the company.  Join the Selfcare Movement here.

(This particular letter is not based on any one instance or experience but an amalgam of many different reactions & past experiences as well as stories shared with me by other people with lung disease & those that love them.  Some of my response in the letter below is also based on things others wished they would have been able to say to other people when they had a less than pleasant experience.) 

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