I did a test run of an active day yesterday. I went out to the community center to try out my new oxygen system.
Today was a big day for me. I changed oxygen suppliers again & got calibrated & fitted for my new oxygen system. It’s called a Niov. It’s basically a portable ventilation system.
I know that sounds intimidating, but it’s not.
It’s not the prettiest looking thing but it works so efficiently that I don’t mind it.
I’m getting sick of the losses. In fact, after 12 years I stopped counting because it was too painful & I knew too many women.
I hate this disease so much & how it not only robs breath, but so many other things. It cheats & steals.
Yesterday was exhausting too but it was for a good reason. I was able to spend most of the afternoon after the doctor’s appointment at least getting the ball rolling on what I need.
I was wiped out yesterday. Still am today. I don’t know why it takes an act of God to get anything done while a doctor is on maternity leave.
I know it’s no one’s fault. It’s just one of those stupid bureaucratic wrinkles that’s a bitch to get past when it happens. Continue reading
One thing I appreciate about my fellow improv performers is most of them do know how to politely poke at what could be uncomfortable subjects in a humorous way.
I know stand up comedians who do this well too & I have a lot of respect for those in comedy who have this gift.
In fact, I respect any form of arts or theatre that take on not often talked about subjects.