I did a test run of an active day yesterday. I went out to the community center to try out my new oxygen system.
Monthly Archives: May 2016
Article: Man Needs Another Miracle 20 Years After Getting New Heart
Frank Bodino’s story is incredible. Read it for yourself here.
Yet, what’s even more incredible is how he’s being re-listed through a novel program after being turned down by 4 other centers even with his relentless dedication to taking care of his donor heart.
Test Driving The Niov System
Today was a big day for me. I changed oxygen suppliers again & got calibrated & fitted for my new oxygen system. It’s called a Niov. It’s basically a portable ventilation system.
I know that sounds intimidating, but it’s not.
It’s not the prettiest looking thing but it works so efficiently that I don’t mind it.
In Memory Of The Girl Who Spun Fire
I know I’ve talked about death before in past posts like this one, and this one. When I do it’s because it hits close to home. These were LAM sisters I knew & had met.
I’m getting sick of the losses. In fact, after 12 years I stopped counting because it was too painful & I knew too many women.
I hate this disease so much & how it not only robs breath, but so many other things. It cheats & steals.
Food For Thought: Mark Liebenow on Organ Donation
Besides Tim Lawrence & Megan Devine, I also follow Mark Liebenow on Twitter. He also has great perspectives on loss & grief, but he also understands the impact of organ donation firsthand & does his best to make other people aware of how important it is.
Second Life Toys: Raising Awareness for Transplant & Organ Donation
I saw some news articles floating around about Second Life Toys & some pictures, but I went to their website for more information because I saw the video on Youtube. I think the idea is genius both for raising awareness of donation & transplant.
Fingers Crossed…Progress
Yesterday was exhausting too but it was for a good reason. I was able to spend most of the afternoon after the doctor’s appointment at least getting the ball rolling on what I need.
A Circus Stole Some of My Monkeys!
I was wiped out yesterday. Still am today. I don’t know why it takes an act of God to get anything done while a doctor is on maternity leave.
I know it’s no one’s fault. It’s just one of those stupid bureaucratic wrinkles that’s a bitch to get past when it happens. Continue reading
Response to TYT: Teen Denied Heart Transplant Over Bad Grades
While I love the Young Turks, I’m torn on this video. Both Cenk & Ana seem to say they understand the transplant process but they oversimplify the decisions that go into listing & selecting candidates for transplant, whether they are adults, or in this case, children.
Dallas Morning News: Dark Comedy, ‘Under The Skin,’ Gets You Laughing About Organ Donation. Really.
One thing I appreciate about my fellow improv performers is most of them do know how to politely poke at what could be uncomfortable subjects in a humorous way.
I know stand up comedians who do this well too & I have a lot of respect for those in comedy who have this gift.
In fact, I respect any form of arts or theatre that take on not often talked about subjects.
