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AS I LIVE & BREATHE

A Woman's Journey With Rare Disease

Daily Archives: 04/23/2016

04.23.16
by Nikki

FAILING BIG

Friday it hit me (& of course Facebook reminded me) that it had been a year since I failed my six minute walk test.  Which meant I’ve been using oxygen for a year now.

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Standard | Posted in blog entries | Tagged chronic illness, chronic life, disability, LAM, lung disease, lung transplant, lymphangioleiomyomatosis, rare disease, spoonies, transplant, TSC, tuberous sclerosis complex | 5 Comments

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