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AS I LIVE & BREATHE

A Woman's Journey With Rare Disease

Daily Archives: 04/09/2016

04.09.16
by Nikki

My Permit Doesn’t Solve Every Problem But It Still Helps

A few weeks ago, I was down for the count with a viral bug.  I had to cancel my meeting for the high risk donor pool & it was upsetting (as it happened the night before).

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Standard | Posted in blog entries | Tagged chronic illness, chronic life, disability, LAM, lung transplant, lymphangioleiomyomatosis, rare disease, spoonie, transplant, TSC, tuberous sclerosis complex | 9 Comments

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