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AS I LIVE & BREATHE

A Woman's Journey With Rare Disease

Daily Archives: 03/03/2016

03.03.16
by Nikki

Voices of Hope: Living With LAM

The nonprofit I partnered with to start my transplant fund, HelpHOPELive, just posted this nice little blog feature. I’m in a good place with things thanks in part to them helping me establish a medical fund & supporting my fundraising efforts.

Standard | Posted in blog entries | 0 comments
03.03.16
by Nikki

Medical Bracelet Considerations

One of the things that comes up for debate every so often in my volunteer communities is the question “I know I need a medical bracelet, but what do I put on it”?

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Standard | Posted in blog entries | Tagged chronic illness, disability, epatient, healthcare, LAM, lung disease, lung transplant, lymphangioleiomyomatosis, medical bracelets, rare disease, spoonies, transplant, TSC, tuberous sclerosis complex | 2 Comments

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