The HOPE Act was a big move in reversing the stance of disqualifying donors & patients alike because of HIV Status. The passage of this act in 2013, led to changes & developing safeguards for transplants in the HIV population.
“Before this act at least 500-600 lives were lost per year because both donors & patients were disqualified from organ transplantation. ” (A statistic taken from this article.)
The past years have been quite the journey & have taken me to some incredibly high and low places, both professionally & personally. I owe quite a bit of that ride to doctors.
So on this National Doctor’s Day, I would like to thank the many doctors I’ve been privileged to know & be cared for by, volunteered with, & worked along side of. As well as those I have come to know as people.
I felt off today when I got up & I didn’t immediately know why. But then it hit me. I saw something in my Timeline on Facebook that triggered me.
I don’t cry easily, but this video that my cousin passed along to me via Facebook yesterday really got the water works going.
I figured it was worth a share… Continue reading
It seems since I went off the Rapamune, my skin has gone a bit crazy & been a bit extra sensitive. I’m not sure why. I’ve used the same types of products I always have on my skin, no major changes. I always use very natural based soap (in fact, one of my hobbies is making my own), but I’ve been subject at points to some fairly intense itching & irritation.
Yet again, I find some actually useful stuff on Facebook. (I can’t remember the exact post or I would have linked to it.)
Propeller Health was asking for participants to try their app & be part of a study in exchange for one of their sensors.
There’s a great chronic illness & disability podcast I found a few months after starting this blog called In Sickness & In Health.
I started interacting with the host, Cara Gael on Twitter & asked her to sit in on a Blab we did on Crowdsourcing Tough Diagnoses.
She’s such a fount of knowledge so I was humbled when she asked me to talk with her last weekend about being on her podcast. I was delighted to do so.
I’ve been on another podcast awhile back but that hasn’t posted yet. When it does, I’ll link to it. I think podcasts as a whole are a great way to share information.