Lung Rejection Webinar (Archive)

On December 10, 2015 the American Thoracic Society (ATS) & the Lung Transplant Foundation (LTF) jointly hosted a webinar for Lung Transplant Week at the ATS. The clinician presenter was Cynthia Gries, Director of Lung Transplantation at the Florida Hospital Transplant Institute.  Continue reading

Unsolicited Advice – Also Thanks, But No Thanks!

My post yesterday about what happened in my ShopRite, a comment by a blogger friend, & discussions with my disability friends about the #SoInspired hashtag on Twitter last week brought back more memories of unwanted “assistance.”

These incidents happened when my illnesses were still invisible (for the most part).  Yet it triggers feelings that are just as strong as the reaction I had to a stranger invading my space.

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Unsolicited Help – Thanks But No Thanks!

I know it’s a little late (or early) for a blog post but I’m still working off the late afternoon coffee I had after my lung function test on Tuesday.

I was recounting something to my friend at my appointment that happened to me this weekend.  I thought maybe sharing this & another associated story might help people with some compassion & understanding of why even if someone has a limitation they are still a person whose space & wishes should be respected at all times & in all places…

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Response: Health Affairs Blog Post: It’s Time For Fairness In Organ Distribution

I don’t know how to feel about this blog post to be quite honest.  I know that the allocation & final rules vary organ to organ, so I can only speak to lungs, not liver.  I wish though, that the Health Affairs Blog would have made that distinction in the title of this post because this clearly only addresses livers. Not other organs in contrast or comparison, so it’s not a wholly balanced discussion.

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I’m Just A ‘Blab’ber Mouth!

I had some fun the other day exploring a new social media tool.  It was called Blab.  It’s kind of like a google hang out or Skype type of tool, but I like it, it seemed a bit more user-friendly & less prone to technical glitches.   I was invited to try it out by a few people I’ve done tweet chats with, which I’m game for because I like exploring & learning about new social media tools.

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