Smart Blood Pressure & Glucose Monitoring

I recently found out my Mobicuff is STILL is in development. I did the pre-order back in April.  It’s a smart phone enabled blood pressure kit.

I know sometimes these devices take time to enhance & develop but admittedly I was a bit frustrated with the reply I did receive back from Safe Heart customer service after I followed up.  They didn’t have a target date for me to receive it.  I’d rather they take their time & get it right but I wish they’d be more forthcoming with email status updates to people who did place pre-orders some time ago.

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Another Interesting & Useful Kickstarter Project

The reality is that once I’m post transplant there are times to avoid germs I will have to wear a mask.  I’m not super jazzed about this as I typically don’t like things over my face (even scarves in the winter on cold days). I will have to get over it, I know… Continue reading

Gratitude

My winter holidays are typically quiet.  I don’t venture out to the midwest during this time of year because the weather is too unpredictable, but luckily I have friends here to make it feel like a holiday anyway. I’m never alone & for that I’m grateful.

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HOT BUTTON: To Friend Or Not To Friend

Invariably, years of volunteering has enriched my life with bringing some wonderful people to me that I may not have met otherwise.   I can also say this about my transplant experience, but then also improv & blogging & other hobbies.  A sense of community is a great thing.  Strong friendships even better…

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Love/Hate With Health Insurance

Many people don’t realize this but many common issues regarding premiums & claims were present before healthcare reform.  I even experienced them myself for a few years when I made the mistake of selecting a plan that looked good on paper, but in reality was quite the opposite. (I even found an error but was never given a way to be able to submit proof to have it corrected).  This was back quite awhile ago, & also part of what prompted me to take a position in customer service in health insurance when I found an opening a few years ago. I learned so much. Some knowledge I’m glad I have & other knowledge I wish I didn’t…

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Exercising With Lung Disease

Admittedly, I had periods of even in better lung health where I slacked on exercise or failed to maintain consistency with a routine because of my energy levels.  Some of the issues I faced had to do with me just getting built up, going into a cycle of sickness & surgery, & then taking a while to come out it of it. I would get easily frustrated with losing everything & having to continually start from square one & feeling weak.

Some of it also could be attributed to the fact that I put my job at the forefront of everything for awhile. This included exercise & personal relationships.  Continue reading

Lung Rejection Webinar (Archive)

On December 10, 2015 the American Thoracic Society (ATS) & the Lung Transplant Foundation (LTF) jointly hosted a webinar for Lung Transplant Week at the ATS. The clinician presenter was Cynthia Gries, Director of Lung Transplantation at the Florida Hospital Transplant Institute.  Continue reading

Unsolicited Advice – Also Thanks, But No Thanks!

My post yesterday about what happened in my ShopRite, a comment by a blogger friend, & discussions with my disability friends about the #SoInspired hashtag on Twitter last week brought back more memories of unwanted “assistance.”

These incidents happened when my illnesses were still invisible (for the most part).  Yet it triggers feelings that are just as strong as the reaction I had to a stranger invading my space.

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