One of my LAM sisters had posted this item to her Facebook wall. Some of these statistics I knew, others I didn’t, but I felt it was worth a share today. It’s extremely interesting & also has some very nice video clips.
Well, I accomplished my goal yesterday. I finished something I had never undertaken before, a novel. At 50,000 words it’s probably more like a novella, but it’s the basis of something good. I do know that.
In the early days of my blog, I mentioned the warm perfusion preservation technique, ex-vivo. Yet, this advance & the technology is not available to all patients & all centers just yet. Also, not all organs can ideally be preserved via a warm perfusion method. Others actually benefit from what’s called cold perfusion, or essentially to “be on ice”. Which was typically the way all organs were preserved up until ex-vivo technology came to be a reality or looked at as a possible option. Continue reading
The TS Alliance alerted me to a very interesting research finding as of late. I have mentioned this rare disease of mine a few times, but it is basically a genetic disorder that causes benign tumors on several of the body’s organs. It wreaks havoc to say the least, sometimes causing epilepsy & autism, as well as other issues. In my case, it also led me to developing LAM (though there is a sporadic form of LAM). As I was growing up, 2 genes were identified through research. I remember hearing rumblings of a possible third gene in the past few years.
Thanksgiving brings back so many memories for me. Though I’m usually not with my parents & family (the plains states weather is too unpredictable), I’m with close friends who make it a nice day. This year is no exception. Often, when I wouldn’t be able to make it home, I found friends in similar positions who were kind enough to take me in for the day. Continue reading
I think I surprised a few people at my last appointment. I asked about getting a tattoo as the appointment was winding down. I had wanted one for years, & thought maybe during the period that I was finally off the immunosuppressant I could maybe get one safely.
Yesterday I did something I wasn’t quite sure I’d do. I hit 40,860 words on the National Novel Writing Challenge I undertook at the beginning of the month. For someone who has never even attempted a novel before it seemed daunting at first. I only had two days notice of the challenge, even though I had a friend & improv teammate who swore by it & has been doing it for years. I can clearly see why.