One would figure by now that I would know tuberous sclerosis complex (TSC) and lymphangioleiomyomatosis (LAM) inside and out. I know quite a bit, but there’s always something to learn in dealing with these diseases because of their unpredictability. Luckily right now, I’m in good shape with the TSC aspects & it’s just tracking research updates & advances. But there’s a few new aspects that are waiting in the wings for me to dig into.
I wish I could take credit for that anonymous quote and the quote on the blog image. They both seem fitting right now. Sleep is something I’m getting more erratically these days. I know it may be just a larger short-term issue right now as I’m trying to develop new routines. But I find it’s annoying to finally fall asleep later at night and then be up right away at 6am. I can be a morning person when I have to be, but it’s not a natural thing for me. Without my morning coffee or shot of caffeine, forget about it.
Normally, I read comments on articles for comedic value & can roll with the punches. Even punches from someone who clearly has no clue what they’re talking about. However, this weekend I was rubbed the wrong way & maybe it’s the rawness of what I’ve been through the past few months that triggered it.
Graduations & retirements are usually cause for celebration. Continue reading
I was not prepared for the emotion that yesterday (9/8) brought though I had tried to prepare for that day in my mind for a while once I knew it was coming. Such a mix of feelings. Relief, disbelief, gratitude, & a degree of sadness. I had prepared for this day for a long time, including the possibility I might not qualify for a transplant because of kidney issues or some other circumstance that might have popped up in testing. Luckily, this is not the case.
The wait is over & the results are in. Continue reading