Yesterday was rough. Can’t lie about that. They save the hardest test for last, I think. If I never have to have that test repeated again I’ll be a happy camper.
I realize I am still a touch out of practice from having multi-day testing. It used to be old hat. I’ve had a lot of the same type of testing the past two days before for various research studies over time at places like the National Institutes of Health (NIH) & a few other places.
I’m writing this to avoid feeling hungry. I have bloodwork & a barium swallow so that means no real food until this afternoon. Which even if you’re not big on breakfast (though I usually am to some degree even if it’s just Cheerios & almond milk), the moment you’re told you can’t have something you want it more. This morning is one of those cases.
I’ve always enjoyed comedy, but I’m a fairly serious person. In fact, sometimes I can be downright anal when it comes to certain elements in my life. But people sometimes will laugh at things I say & do because I find humor in things that others don’t. It’s sometimes off-beat, corny, dry & snarky. But it’s always been (to some degree) a defense mechanism.
Another boring “business of healthcare type post?” Really? Yes, really. While this isn’t specifically related to my previous post, it does affect it. It also may not be specifically transplant related but it also has an impact there. I’m sure it’s not my only healthcare pet peeve, but a larger one. It’s also one I’m sure that concerns many of us. Maybe it’s an even bigger issue than the few I pointed out in my previous post. It’s the P “word” – price transparency. What the heck is it? Why should we care?
I know laying out this “business side of medicine” seems a trite & boring discussion that no one should care about. But it’s anything but that. This is something everyone, whether they have chronic illness, rare diseases, or not can relate to & I’m sure find equally frustrating when it’s happened. How many of us have called to book an appointment with their primary care doctor or specialist & been told (less than nicely, I might add), “Dr. X is no longer with the practice”. Or “Dr. X no longer takes (insert name) insurance.”
This HealthDay article really struck a cord when I read it. It’s not only the kidney population that sometimes has issues with the process of when to refer or list, it’s other organs too. But it’s compelling food for thought for patients and professionals, as transplantation is a treatment, but not a cure. They are also costly, but overall may be less costly than other long-term interventions that don’t offer many of the benefits & the possible quality of life improvements that transplants do. As I was reading that article, certain paragraphs resonated with me, but as much as we try and contribute this to a professional issue of late referrals, I personally believe there’s more to it.