What Exactly is EX-VIVO Lung Perfusion?

In my past post, Deeper Questions, I mentioned that my transplant center, Hospital of the University of Pennsylvania (UPENN) uses a technology called ex-vivo lung perfusion to make transplanted lungs more viable, allowing them to be sustained outside the body for longer periods, & potentially reversing damage that might have once caused lungs to not be suitable for transplant.  They have some excellent information at the website as part of the lung transplant program page that outlines this technology (in fact, that’s where I found the image I used to accompany this post) what exactly it is, & how it’s led to more transplants & better outcomes.

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Rare Diseases That Are Often Misdiagnosed As LAM

There are a few diseases that are eerily similar to LAM but are not LAM.   I know firsthand some women who were incorrectly diagnosed with several diseases prior to finding out they have LAM. There were other women who were told by doctors intially they had LAM, but did not in fact have it upon further investigation by clinician-researchers of LAM. It was then discovered that they were incorrectly diagnosed with  LAM.  Why blog about this?

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