I had shared this news article to Facebook awhile ago for a few reasons. For one, I was excited that my center (Hospital of the University of Pennsylvania) already has & utilizes this technology. They are a hospital that is ranked 10th in Pulmonology in the Nation (source: US News & World Report – Best Hospitals) but also they have one of the oldest transplant centers with highest outcomes post transplant. Given the risk of double lung transplants, this makes me feel more secure. Even the centers in NY do not have the track record that Upenn has. This is amazing to me because one of my main fears when my friends & I were moving to the Lehigh Valley in 2010 was where I could continue my medical care since both TSC & LAM are rare diseases & I wondered if I would I be in as good of hands as I was in NY. I feel the honest answer is I’m in better.
Yet there was an important question I’d soon have to consider for myself outside of this article. How would I feel about being transplanted with “marginal” lungs?