I was wandering the newest supermarket to go up in our area yesterday. I was perusing the grab & go/hot food sections (just to see what they had) when I heard some one ask me, “Hey, what’s the battery life on that thing?”. Continue reading
Monthly Archives: August 2015
Like/Dislike Relationship With Facebook
I know this seems a pretty random post, but it’s not. I tend to vacillate back-and-forth on this subject, often. I’ve hesitated writing about it because I’m sure it will open a can of worms.
Now For the Boring Bureaucracy
I spoke with my social worker at my transplant center today. He was very helpful with clarifying a few questions I needed to ask about things I had mulled over recently, including if & when I should start to apply for federal disability. He recommended that I start my application for Social Security Disability now. Fun, Fun…let the hoop jumping commence.
Checking Off the Boxes
I need to remind myself to slow down a bit…but I always feel better when I’m getting things done. Today I managed to do quite a bit but still have more on tap for tomorrow (but this was stuff that needs to get done but a little less pressing). At any rate, I was given a health maintenance checklist at my evaluation so that’s why I pushed today. Continue reading
Bag of Mixed Blessings
So this article popped up in a few of my groups recently & on Facebook pages I follow (like The Lung Transplant Foundation‘s page). I found this intriguing for a few reasons.
Organ Donation: Myths, Facts & Hope
I do talk a lot about “debunking” transplant & organ donation myths. However, I didn’t do it quite as well as these sources…If you’re on the fence, get the facts; give these a read & then decide for yourself.
Death & LAM Both Suck
Not the greatest day today (Saturday). Started off hearing we lost another woman with LAM who was waiting for a transplant.
Yesterday was rough. Can’t lie about that. They save the hardest test for last, I think. If I never have to have that test repeated again I’ll be a happy camper.
Running the Gauntlet
I realize I am still a touch out of practice from having multi-day testing. It used to be old hat. I’ve had a lot of the same type of testing the past two days before for various research studies over time at places like the National Institutes of Health (NIH) & a few other places.
I’m writing this to avoid feeling hungry. I have bloodwork & a barium swallow so that means no real food until this afternoon. Which even if you’re not big on breakfast (though I usually am to some degree even if it’s just Cheerios & almond milk), the moment you’re told you can’t have something you want it more. This morning is one of those cases.